Inherited Heart Disease
The Inherited Heart Disease Unit is basically devoted to providing care. We have a team of two cardiologists, three interns and two nurses, one full-time and one part-time. This Unit addresses all myocardiopathies in general, and inherited cases in particular.
Myocardiopathies are diseases where the myocardium is weak, dilated or has some other structural problem. Often, the heart is unable to pump or work properly. In the case of inherited myocardiopathies, due to the fact they are often treated as part of uncommon diseases, specialist management is not within the scope of all clinical cardiologists. It requires specific treatment and involves specific technology.
We have an outpatient clinic connected to a day hospital and conventional hospitalisation, with support from the Imaging, Haemodynamics, Electrophysiology and Arrhythmias Units.
This Unit is also responsible for teaching and research. It is connected to the Genetics Unit with a unit for clinical research and a unit for basic research.
The main healthcare objectives of our Unit are:
- Excellence in care for index patients and family members with hereditary and/or genetic myocardial diseases.
- The creation of a protocol for medical action in these diseases.
- Homogenisation of care.
- The optimisation of care resources, reducing the overall cost of treatment.
- The provision of technology required for patients.
- The performance of genetic studies on patients (control index) and relatives.
- Genetic counselling for families and individuals, which predict the likelihood of passing the illness on to children.
- We provide consultations for other doctors, both at our hospital and other hospitals and primary care centres.
- Creation of fast-stream pathways for referral or interconsultations for cases where the patient must be referred to another professional.
- Reduction of barriers that often limit direct contact between patients and healthcare staff, as well as communication between staff and other institutions.
Fermín Fernández Álvarez, Porter Coordinator, explains the importance of the role these professionals play in the hospital. After 36 years at Vall d’Hebron, Fermín is a real master of the ways things are done. He says that a porter has to combine humility, discretion and safety with a single goal: that patients receive human and friendly treatment.
The constant search for excellence is part of Hospital Vall d’Hebron’s nature. The biggest hospital in Catalonia and the leader in many fields, headed since February 2015 by Dr. Vicenç Martínez Ibáñez, who has a close personal and professional relationship with the Hospital. Dr. Martínez Ibáñez says that if Vall d’Hebron did not exist, it would need to be invented. The current director trained at the hospital, where he was one of the protagonists of an historic moment: the first paediatric liver transplant in Spain. Now, he is committed to continuing this legacy and, always putting the patient first, achieving excellence across all staff.
The Neonatology Department’s Sibling Project is a workshop for the siblings of new-born babies admitted to the Paediatric Intensive Care Unit in the Vall d’Hebron Maternity and Children's Hospital. Through simulated games and situations, the project prepares them to get used to seeing their younger siblings in a hospital medical setting.
Vall d’Hebron University Hospital’s kitchen serves more than 1,000 meals a day, twice a day, not counting breakfast. A reality that José Parrilla and Carmina Esteban know all too well.From three kitchens to one and from coal to gas. That is how the hospital’s catering service has evolved. A place where the needs of each patient must be taken into account and where there is room for small, juicy anecdotes.
The former head of the Thoracic Surgery Department, Dr. Mercè Canela, recently retired, recalls the important evolution of the Department to become a leader in Spain and a lung transplant pioneer. A task made possible thanks to collaboration with professionals from other departments, an added value in the personal and team environment.
Rosalia Moure arrived at Vall d’Hebron University Hospital in 1967. She spent her entire working life in the linen and laundry department of the Hospital. Rosalia Moure has witnessed the Hospital’s big transformations, from dictatorship to democracy and from analogue to digital systems.
Dr. Josep Sánchez de Toledo Codina, head of the Paediatric Haematology and Oncology Department, tells us about a Department that has laid the foundations for the specialism in Spain. He also remembers the evolution of transplants from haematopoietic stem cells and progenitors, from the beginning, buying the material at a shop in Barcelona city centre, to the more than 1,200 transplants that have now been performed.